This British research project is attempting to explore the potential of multimedia storytelling to stimulate public engagement with human genomics research, and to democratise debates about ethics and social justice.
The implications of human genomics for social justice, and the impacts of a market-driven research agenda upon already-trenchant global health inequalities, are too often neglected in debates about ‘genethics’. Globally, the input of various publics into the direction and governance of genomics is minimal at best, and the perspectives of indigenous and other marginalised peoples are voiced the least - within bioethics and the media.
This research aims to experiment with digital storytelling as an innovative technique of participatory ethnographic research and as a public novel engagement - to stimulate dialogue between indigenous peoples, scientists and ethicists.
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